This American woman living with a rare heart disease

Sophia, a 30-year-old woman from Massachusetts, is living with a rare genetic heart disease that causes her pulse to not run. Sophia, who is on advanced medical treatment, describes herself as "battery-driven". He has been diagnosed with irreversible dilated cardiomyopathy, a heart muscle disorder that affects one of the ventricles, potentially leading to heart failure. Sophia relies on a life-saving medical device called LVAD (Left Ventricular Assist Device) to keep her heart working until her heart is transplanted.

The Left Ventricular Assist Device (LVAD) helps maintain blood circulation throughout the body by helping to pump the left side of the heart. According to The People magazine, Sophia came to know about her condition in the summer of 2022.

"I started feeling really in pain and feeling very tired. It's like a fatigue that you can't really describe. I was not tired of my mind, but my body was very tired.

Twin sister also has the same disease

Sophia's twin sister Olivia was also born with the same rare genetic disease, but it wasn't detected until Sophia also became ill. Her sister also had a heart disease seven years ago, but it was not known that it was due to genetic reasons.